MDA
About a month ago I received a phone call at work from a man that said he got a referral for me from my supervisor. He wanted me to head a team to walk for the Muscular Dystrophy Association's Annual Muscle Walk in Apex. Now I'm not usually the person that says yes to these things but I'm sitting at my desk at my fairly new job and my supervisor has basically volunteered me to participate in this and so I suck it up and say sure. They got my mailing information and send me a packet on how to be a team leader. I've got to find 10 people that are willing to help me raise funds as well as walk with me in March at the park in Apex. Okay! I can do this, I have friends...a few that even owe me for years past where I've helped them when they were heading a group like this. So, I rally a few people and I've managed to get a yes I'll help from at least 5 people. This is harder than I thought! Not only do I have to get a team together, we all have to raise money! Well, I got my website together and then I posted it on facebook asking for donations. Nothing. Hmmm. Okay so I post it again expressing how much I would appreciate the help from anyone willing to donate to a good cause and I also start the donating with some money of my own to show that I am not only willing to get out there and walk on a Saturday but I'm willing to take some of my own hard earned money and put it towards this cause. WOO! I got one person to donate! That is just awesome. And that's also where it stopped.
So, here's some information about Muscular Dystrophy to help motivate my dear readers to help me out in this amazing cause.
Muscular dystrophies, or MD, are a group of inherited conditions, which means they are passed down through families. They may occur in childhood or adulthood. There are many different types of muscular dystrophy. They include:
Becker muscular dystrophy
Duchenne muscular dystrophy
Emery-Dreifuss muscular dystrophy
Facioscapulohumeral muscular dystrophy
Limb-girdle muscular dystrophy
Myotonia congenita
Myotonic dystrophy
All of the muscles may be affected. Or, only specific groups of muscles may be affected, such as those around the pelvis, shoulder, or face. Muscular dystrophy can affect adults, but the more severe forms tend to occur in early childhood. Some of the Symptoms include:
Mental retardation (only present in some types of the condition)
Muscle weakness that slowly gets worse
Delayed development of muscle motor skills
Difficulty using one or more muscle groups
Drooling
Eyelid drooping (ptosis)
Frequent falls
Loss of strength in a muscle or group of muscles as an adult
Loss in muscle size
Problems walking (delayed walking)
There are no known cures for the various muscular dystrophies. The goal of treatment is to control symptoms.
Physical therapy may help patients maintain muscle strength and function. Orthopedic appliances such as braces and wheelchairs can improve mobility and self-care abilities. In some cases, surgery on the spine or legs may help improve function.
Corticosteroids taken by mouth are sometimes prescribed to children to keep them walking for as along as possible. -http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002172
That sounds like a whole lot of medical speak huh? What I get from that is MD is inherited, passed from parents to their children. Most of the types of MD are incurable BUT with treatment are bearable and the people that have it can live, maybe not a normal life but a more normal life than without treatment. After doing some online research and reading a few of the stories of other groups participating in this I've decided it's truly a worthy cause and I really want to be able to help out.
What does a donation from you do? It funds the research programs that help Dr's find out more about how to treat MD, it funds the clinics where people who suffer from MD will go to get help for their disorder, it sends a child with MD to summer camp where they get to be with other children suffering from the same disorder they have and where they learn to live, and it goes towards loan programs that assist families get the medical equipment they need to treat the disorder in their loved ones.
What your Muscle Walk Dollar Buys
$13 Donate one dollar for every healthy muscle it takes to smile.
$26 Donate $13 more if all of your smile muscles are healthy ones.
$100 Donate $100 to fund an MDA support group and help keep a smile on the face of a family member.
$146 Donate one dollar for every muscle it takes to plant a kiss on someone you love. You’ll give new meaning to the phrase: Sealed with 146 muscles!
$656 Donate one dollar for each muscle in the human body—and be thankful if all of yours are healthy.
$800 Donate the amount it takes to send one child to MDA Summer Camp so they can use their muscles to smile and play!
Kinda cute how they did that huh? If you would like the opportunity to help fund research and even the possibility of sending a child with Muscular Dystrophy to summer camp... please take a moment to donate here: https://www.joinmda.org/2011tmw/relbell83
I understand not having a lot of money for yourself, let alone donating to another's cause, but they do have an option where you can donate any amount you like...even a $5.00 donation puts us closer to our goal.
So, here's some information about Muscular Dystrophy to help motivate my dear readers to help me out in this amazing cause.
Muscular dystrophies, or MD, are a group of inherited conditions, which means they are passed down through families. They may occur in childhood or adulthood. There are many different types of muscular dystrophy. They include:
Becker muscular dystrophy
Duchenne muscular dystrophy
Emery-Dreifuss muscular dystrophy
Facioscapulohumeral muscular dystrophy
Limb-girdle muscular dystrophy
Myotonia congenita
Myotonic dystrophy
All of the muscles may be affected. Or, only specific groups of muscles may be affected, such as those around the pelvis, shoulder, or face. Muscular dystrophy can affect adults, but the more severe forms tend to occur in early childhood. Some of the Symptoms include:
Mental retardation (only present in some types of the condition)
Muscle weakness that slowly gets worse
Delayed development of muscle motor skills
Difficulty using one or more muscle groups
Drooling
Eyelid drooping (ptosis)
Frequent falls
Loss of strength in a muscle or group of muscles as an adult
Loss in muscle size
Problems walking (delayed walking)
There are no known cures for the various muscular dystrophies. The goal of treatment is to control symptoms.
Physical therapy may help patients maintain muscle strength and function. Orthopedic appliances such as braces and wheelchairs can improve mobility and self-care abilities. In some cases, surgery on the spine or legs may help improve function.
Corticosteroids taken by mouth are sometimes prescribed to children to keep them walking for as along as possible. -http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002172
That sounds like a whole lot of medical speak huh? What I get from that is MD is inherited, passed from parents to their children. Most of the types of MD are incurable BUT with treatment are bearable and the people that have it can live, maybe not a normal life but a more normal life than without treatment. After doing some online research and reading a few of the stories of other groups participating in this I've decided it's truly a worthy cause and I really want to be able to help out.
What does a donation from you do? It funds the research programs that help Dr's find out more about how to treat MD, it funds the clinics where people who suffer from MD will go to get help for their disorder, it sends a child with MD to summer camp where they get to be with other children suffering from the same disorder they have and where they learn to live, and it goes towards loan programs that assist families get the medical equipment they need to treat the disorder in their loved ones.
What your Muscle Walk Dollar Buys
$13 Donate one dollar for every healthy muscle it takes to smile.
$26 Donate $13 more if all of your smile muscles are healthy ones.
$100 Donate $100 to fund an MDA support group and help keep a smile on the face of a family member.
$146 Donate one dollar for every muscle it takes to plant a kiss on someone you love. You’ll give new meaning to the phrase: Sealed with 146 muscles!
$656 Donate one dollar for each muscle in the human body—and be thankful if all of yours are healthy.
$800 Donate the amount it takes to send one child to MDA Summer Camp so they can use their muscles to smile and play!
Kinda cute how they did that huh? If you would like the opportunity to help fund research and even the possibility of sending a child with Muscular Dystrophy to summer camp... please take a moment to donate here: https://www.joinmda.org/2011tmw/relbell83
I understand not having a lot of money for yourself, let alone donating to another's cause, but they do have an option where you can donate any amount you like...even a $5.00 donation puts us closer to our goal.
4 Share The Love:
I tried making a donation and the website said there was an error to try again later...
Yeah it did that to me the first time I just re-entered my info and it went through the second time. :-) Thanks for the support!
When is the weekend of the walk? We will be in Raleigh during our Spring Break and I would love to do the walk with you (I could even talk Dan into it too!)
Amanda that is awesome! It's March 26th! :-) You can also click on the link listed and it has the information there...like the park and what times and everything! I would LOVE it if you can come!
Post a Comment